Patients in the Driving Seat: insights from the DHU Catalyst session at the European Institute for Innovation Through Health Data’s Conference
DigitalHealthUptake organized a dedicated catalyst session titled “Patients in the Driving Seat’’ focused on exploring the patients’ perspectives on health data sharing, emphasizing its indispensable role in their healthcare journey and integrated care. The session was hosted on December 1st in Ghent during The European Institute for Innovation Through Health Data’s Annual Conference and was divided into 2 parts:
Part 1: Exploring Patients’ Approach and Health Data Sharing Benefits
The first session focused on the patients’ approach, holistic care and the benefits of sharing health data.
During the discussion the following key recommendations were highlighted:
1. Transforming Healthcare Model: there is an urgent change required for the collaborative sharing of medical data, benefiting patients, practitioners, industry, governments, and the community.
2. Trust Tools: Labeling apps and quality marks are crucial for building trust, facilitating informed citizen decisions, and earning confident health professional recommendations.
3. Individualized Data: recognizing diverse contexts and preferences in data sharing is paramount, moving away from a “one size fits all” approach.
4. Shared Data Potential: shared data significantly improves decisions for both patients and health professionals, fostering a balanced relationship.
5. Citizen Empowerment: advocacy for raising awareness, respecting choices about data sharing, and empowering citizens in their healthcare decisions is essential.
6. Patient Governance Involvement: patients must be included in decision-making processes and align legislation with their specific needs.
Part 2: Exploring Health Data Solutions Implementation, Adoption, and Scalability
The catalyst session continued in the afternoon with discussions on the implementation, adoption, and scalability of health data solutions.
- Unify Patients’ Records: #1Patient1Record4Belgium.
Challenge: Collaborative data sharing faces obstacles requiring collective effort.
How: Advocating for unified patient records is essential. Decision-makers must prioritize this initiative, emphasizing its impact on primary care.
- Framework for Health Apps: Label2Enable
Challenge: User hesitancy toward health apps due to a lack of guidance.
How: Establishing quality standards is crucial. This not only guides users but also assists professionals in selecting health apps that are beneficial and trustworthy.
- Digital Support and Personalized Care: ADLIFE Project
Challenge: Patient engagement necessitates co-creation and feedback.
How: The Patient Empowerment Platform (PEP) provides a solution. It facilitates access to care plans, feedback mechanisms, educational resources, and shared decision-making.
- Enhancing Cardiovascular Healthcare: AIDAVA Initiative
Challenge: Scaling data interoperability lacks reliable conduits.
How: An AI-powered virtual assistant prototype is proposed. This solution ensures adaptable interoperability, reducing manual data cleaning costs and time.
- Advancing Remote Monitoring: Byteflies Solution
Challenge: Healthcare facility standards pose obstacles to remote monitoring integration.
How: Implementing a telemonitoring prescription with pillars—context integration, authentication, and an online portal—ensures a secure and standardized approach, fostering trust in the process.
DHU’s Catalyst Sessions Enrich Digital Health Experiences with Innovative Workshops
DHU provides free complementary workshops for digital health events, seamlessly integrating them into the main program or as pre-event sessions in collaboration with organizers. We explore topics from the perspectives of demand actors, innovators, and impactful interveners. Catalyst sessions promote dynamic discussions, enhancing the overall event experience.
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